MACLEOD SPEAKS ABOUT DUCHENNE MUSCULAR DYSTROPHY AND TUTUS FOR TANNER PDF Print E-mail
Thursday, 23 September 2010 09:57

Ms. Lisa MacLeod: Last summer I was able to meet some very remarkable people, and it all came about because of Twitter.

Catherine Connors, who's a resident of Bowmanville here in the province of Ontario, made the world aware of her nephew Tanner. He's a boy fighting Duchenne muscular dystrophy, and he fights this disease daily. It's debilitating. Catherine, a great Ontarian, created a run for her nephew. It was called Tutus for Tanner, and I'm sure many of you heard about it.

On the way to New York City, Air Canada disassembled his wheelchair. It went through Twitter. A man from Oakville, Scott Stratten of UnMarketing, tweeted about this. It reached a lady in Nepean named Krista House, and then it reached me at about 10:30 on an evening. My staff and I decided to get involved. We were able to contact the then transportation minister, John Baird, to work with Air Canada, and we were finally able to get-through thousands of people who were following this saga on Twitter-Tanner his wheelchair back.

This Legislature played an exemplary role. We were able to host Tanner and his family here before they went back to British Columbia, and Speaker Peters actually brought this young man on to the floor of this House. Dr. Marie Bountrogianni, a former MPP whom many of us in this chamber are very fond of, also invited Tanner and his family to the Royal Ontario Museum. For Tanner, the most exciting part of Toronto was the fact that the Speaker of the Ontario Legislature lives here, and he was stuck on that the entire time he was here.

I'd also be remiss not to say thank you so much to a man named Jack Matrosov. When I contacted his Mississauga company to see if we could arrange for transportation for Tanner when he was in Toronto, they stepped up to the plate.

We have a great province here and a lot of great people. Tutus for Tanner was a very important event. Thousands of people helped him. They ran for him and they fought for him.

I think it's very important for this Legislature to know what we were able to do in August of this past year.